Over the past year we have build an integrated, multidisciplinary Transplant Center from our individual transplant programs. Transplant medicine has been at the pinnacle of value-based health care owing to mandatory outcome reporting on primary (patient and graft survival) and secondary (rejections and organ function) outcomes. However, we want to improve on the current status quo and bring it to the next level. We want to implement registration at the source (in our EMR), perform automatic uploads to mandatory reporting systems, implement tertiary, quaternary and higher outcome reporting by developing PROMs and establishing links with our complication and waitlist registries, and finally link it to our financial data. We want to build an dashboard that visualises all this with information from our hospital information system (readmissions, lenght of stay, etc.). The questions I have are:
1] How to build support from the work floor to implement registration at the source in a convenient way. The burden and time effort of registration should not outweigh the merits of a dashboard.
2] How to get budget and IT prioritization (support) from upper management. This is not part of refundable care and there is feeling that transplant medicine is approaching the asymptote of value based health care with increasing cost / effort for increasingly less added value. How to create a sense of urgency and need?
3] How to get (an overview) of technical know-how and necessities to build the Dashboard from different databases without the need to involve expensive consultants (to not play into issue #2)?